After suffering four massive strokes at the age of six, leaving her partially paralyzed, read about her miraculous recovery!
****UPDATE. JUNE 15, 2018****
Hello friends! We have been very busy trying to get Sophia better from another roller coaster ride of recent medical ups and downs. She is currently on an upswing and we are working with doctors to rebuild her immune system.
Sophia attended her first VBS (Vacation Bible School) at our church last week. She came alive each day learning the Bible, singing new praise songs, learning to sign bible verses, and worshiping with her friends.
Sophia has been having mild headaches recently which make her anxious about potential oncoming strokes. But her brother and I volunteered to help with VBS and it helped put her at ease having us both there.
Attending VBS was also very important to her because it tested her endurance and focus. She was very happy that she made it through the entire week, completing the activities with her friends, and not having to be in her wheelchair once!
We have very exciting news!
Sophia will be premiering her own YouTube channel next week to allow her to speak directly to all of you.
Please check back to click on her first video link which will be posted in the next few days!
***April 22, 2018***
Join Sophia today at Second Baptist Church in Levelland, Texas. at 11:00!
***Update April 18, 2018***
Thank you everyone for your patience on waiting for an update on Sophia.
After our visit to Washington DC we returned home and the entire family became very ill with the flu after Valentine’s Day. Sophia and I had the worst of it, and it has taken nearly two months for her to recover.
Her immune system was already compromised and it took three rounds of antibiotics and bedrest to fully recover.
We have resumed our regular routine only recently and I have started to update this site.
Sophia has been recovering from her brain surgery remarkably well! She is most excited that her hair has started to grow back and is beginning to wear her scars with pride.
The family attended the Pray Jones 2018 Prayer event in Lubbock at the Texas Tech Jones Stadium and she loved it! She was so excited to be with thousands of people coming together in prayer!
She has filmed a few segments for tv station KAMC in Lubbock which can be viewed at www.everythinglubbock.com through a search of her name.
Sophia also gave an interview for The Brownfield News after we returned home from Washington DC which can be viewed at www.brownfieldonline.com.
Today she will be featured in Canada on www.100huntley.com for Crossroads Christian Communications.
Unfortunately, almost every time we took her out to the Pray Jones event, to film at KAMC, to attend church or her therapy, she almost always became sick with the flu again or I did and we seemed to just pass it back and forth to each other. She is very happy to finally be over that brutal flu but is even more excited that Spring is here and she can play outside!
Thank you to everyone who helped us spread her story and prayer request. We are still receiving prayers and emails for her which we read every day to her. She says her heart feels so full when I read her the messages and cards from everyone. She especially loves hearing people testify!
We will not know if the surgery was successful until after new MRI and MRA images are completed in July at Cook Children’s Hospital in Fort Worth, Texas.
This surgery was not a cure for Sophia, it was a way to try and give her alternative sources of blood supply to the brain since her native blood vessels are compromised as they narrow and close. We continue to pray that the blood vessels ”take root” and help us have Sophia as Sophia a little longer!
Lately her focus has been on chatting non-stop about God loving hearing our prayers. She told us that prayers are not messages you leave on God’s voicemail about things you want or things you want to say thank you for, but prayer is a conversation with God and He loves us talking to Him. She still continues to humble us.
Her memory loss still remains her biggest struggle to deal with and has now started calling it her “archenemy”. She recently forgot who her brother was, which has not happened in over two years. When she regained her focus and memory of him, they hugged for what seemed like an eternity.
Sophia does not always remember the prayer request or her whirlwind trip to Washington DC, but I show her pictures and eventually she recalls bits and pieces. Sometimes she touches her head and panics at why her head is shaved or feels the scars, and I simply remind her that she’s had brain surgery and show her pictures of her adventures in Boston. She never gets angry or depressed, she accepts her memory loss issues with such strength!
When she sees images of President Trump she always says “Look, it’s my friend President Donald Trump!” And yes, she did meet him, and yes, he was ”simply wonderful” as she puts it.
I will be adding more details on this website about Sophia’s adventures this year as well as progress on her recovery. Again I ask for patience with doing this, being so sick took much time from us both and we are only now beginning to get back into our routine of homeschooling, daily physical and occupational work, doctor appointments, church, and life’s busy work.
God Bless you all!
This is a work in progress as we take this journey to bring her story to all who are willing to hear it. It will change as we continue telling her story in more detail, post photos and videos of her, and add her new experiences, including her personal plans for independence.
Our family has not been on social media due to our focus on Sophia's constant medical problems. Recently we agreed to create a website to tell her story. For years people have asked where they could follow her medical progress or learn more about this precious child that has so graciously touched our lives and the lives of people who have met her or heard of her amazing journey.
Please check back regularly to see how this develops! We ask for your patience as we work through building the site and find its ultimate purpose.
We are beginning to see this venture mold into a future foundation in Sophia's name to raise funding for pediatric stroke research. We are working with several people to get moving on developing this idea, so check back to see how this goes!!
We are excited to come share Sophia's story about God's Grace with your church, school, company, or organization.
Contact us for more details!
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